Announcement: Passing of Dr. Mary Jones

Dear friends and families, it is with a heavy heart that we share with you the news that Dr. Mary Jones passed away over the weekend. Dr. Jones’ legacy is one of inspired leadership and compassion in her dedication to the health and wellbeing of some of our community’s most vulnerable children. As both a long time community pediatrician, and more recently as Director of the Rett Syndrome Clinic, one of very few clinics of its of its kind in the western U.S., she was an enduring champion for her patients and was deeply committed to her work. We are proud, and humbled to have had Dr. Jones part of our Oakland community for over 40 years.

Dr. Jones was beloved by her patients, their families and our staff, and will be deeply missed. Please join us as we extend our condolences and appreciation of Dr. Jones to her patients, family, friends and colleagues.

Dr. Jones’ family asks, in lieu of flowers, for donations to the Katie Nues Foundation or Xenophon Theraputic Riding Center (http://xenophontrc.org/)


Dr Mary Jones Bronze Bambino CHO award 042514

Spirit of Giving

Why donate?  Your funds all go to Katie’s Clinic for Rett Syndrome to cover the clinical care, research projects, and community education, that is not reimbursable by insurance or covered by grants.  No family is ever turned away.

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Katie Clinic COE CHORI 022417 for web

How to Reach Us

jnues@katienuesfoundation.org

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Dad and Katie

Katie’s Clinic Achievements

NIH funded – Natural History Study (2005 – Present)

Clinical Drug Trials

Therapeutic Research

Advocacy

Clinical Research Center of Excellence Award (2017)

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Our Philosophy- The Enriched Environment

Research has documented that enriching
the environment can improve the condition
of Rett syndrome. Rett syndrome is not a
degenerative condition, rather, nerve cells are
small and underdeveloped. Through a process
called neuroplasticity, neurons form new
connections, allowing an individual to learn
and to build new skills.
We have compiled the elements of an
enriched environment:
• Communication
• Mobility
• Socialization
• Attention to apraxia/anxiety/neurosensory
regulation
• Optimal medical health
By integrating these elements into our
patients’ lives, learning and literacy can follow.
Appropriate therapies and the hard work
of families greatly contribute to creating
enriched environments for individuals with
Rett syndrome. Years of experience have
taught our team to presume competence in
the abilities of these individuals. We believe!

Clinic Photo